Saturday, March 12, 2011

My Very First Post!

   Today, I will post my first post.
   Since this is my first post, and since you may not know me before reading this, I'll take some time to describe myself.
   My name is Rachel. I am a middle schooler. I am spunky, moody, messy, and creative. Recently, though, I have been diagnosed with polyarticular juvenile idiopathic arthritis, or JIA. It is in virtually all of my joints besides my hips, shoulders, jaw, and toes. I live close to and amazing hospital where I go for rheumatology. My rheumatologist is amazing. He is so incredible that trying to describe him with words would disrespect all the work he has put in to making me feel better. I don't have the classic inflammatory arthritis, but when he ran tests, he found the arthritis hiding deep inside of me.
   I miss that days where I could run around and fling a lacrosse stick. Luckily, I have a ton of amazing people surronding me. Everyone has been so supportive.
   So why am I writing this blog? Well, one of my friends told me about another person who was very dear to her and I read this person's blog. She, too, had an autoimmune disorder. Through her blog, she provided hope and inspiration to others and learned more about herself.
   Now that you know about what's happening to me, I'm taking a fresh start. I'm not looking back. I'm taking life as it's thrown at me.

Love,
Rachel

10 comments:

  1. Dear Rachel,
    I'm sorry I didn't know how bad it was but you're AWESOME and I hope you get better.
    Also I'm the first to comment. YAY!

    Love you girlfriend!
    -Addie :)

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  2. Hey Rachel ,
    I admire you 4 what you are doing and how brave you are being! i hope you enjoy the gifts and don't know exactly how it feels but I've had to live with someone that had similar problems and it has made me so much stronger as a person!
    ALL OF MY LOVE!!!!!!,
    Amelia:)

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  3. Hey Rachel,
    Remember me, Sneha? I am praying for you from India. I know you are a strong girl and will do fine. Love, Sneha

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  4. Hey its Dana!
    Rachel, after reading this, it made me realize just how strong and brave you are. There are so many things I admire about you. I love the fact that even while going through all this, you still take time to focus on others. You are soo selfless and if theres anyone who deservers all this, its most definately not you! I really wish there were something I could do to make you better because I hate to see you go through this at 11 years old. I think you are VERY strong. I want to let you know that I will be there for you forever and always.
    LOVE YA and BEST WISHES!!!
    <3, Dana

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  5. Rachel i just wanted to tell you that you are a strong girl and you have made me realize that im really lucky. I know you will overcome these things because you have so much hope. Everyday i think about how you have made an impact on my life and what i would do without you. i agree with everything that dana said.I MISS U RACHEL!!!!!!!

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  6. Hello Rachel! I hope you don't mind that Dasia's mom shared your blog with me. Since reading your story, I too I'm taking life as it is thrown at me!!! and asking how much wisdom can one 11 year old have??? You are a true inspiration! Please think about adding witty and intelligent and wisebeyondmyyears to your descriptionofself.

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  7. Hi Everyone!
    Addie,
    Thank you! Congrats that you're the first to comment!
    Amelia,
    You are awesome! Thank you! Luv ya!
    Sneha,
    Of course I remember you! How could I forget? Thank you and I miss you!
    Dana,
    I'm not as strong as you might think and please don't feel sorry for me. Even so, thank you sooooo much! You're a great friend!
    Dasia,
    Thank you! I miss you very, very much!
    Anonymous,
    I didn't want to leave you out. Of course I don't mind that you're reading my blog! I very much appreciate that you would take time out of your day to do so. Thank you!

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  8. Hey Rachel! I know I am late at commenting I just read your blog an it is amanda from when we were younger and I miss you terribly. You are an inspiration to me rachel! I have a disease in elbow and it bothers me all the timee, but after reading all of your posts I have realized that I should use this as a learning experience, and be strong. I miss you so much rachel, and if you ever need to talk to someone I am here for you!
    -Amanda

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  9. Oh my gosh Amanda I miss you soooooo much! It is great to hear from you! You are an AWESOME role model for me! Thank you! I am glad you are taking something away from my blog! We'll talk sometime soon; my family joined the pool again and we saw your mom and brother there a couple days ago. Miss you!

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  10. Awww! Rachel I miss you soooooo much to! I want you to know that you are a huge role model to me, and I will never forget you! Your welcome Rachel, and thank you too! I hope to see you soon!
    Love amanda

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Feel free to comment or shoot me an email - thekidwitharthritis@gmail.com I'll try to get back to you either way!